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Lupus: A Personal Story and Tips for Living Well

I was diagnosed with lupus at the age of 19. It was a devastating blow, and I was determined to not let it define me. I learned everything I could about the disease and how to manage it, and I made a commitment to living my life to the fullest.

Lupus is a chronic autoimmune disease that can affect many parts of the body, including the skin, joints, and internal organs. It is a complex disease, and there is no cure. However, there are treatments available that can help to manage the symptoms and improve quality of life.

I have been fortunate to find a treatment plan that works for me, and I am able to live a relatively normal life. However, I know that lupus can be a very challenging disease, and I want to offer some tips and advice to others who are living with it.

Here are a few things that have helped me:

  • Listen to your body. Lupus can be unpredictable, so it is important to pay attention to your body’s signals. If you are feeling tired, rest. If you are in pain, take medication. Don’t push yourself too hard.
  • Find a support system. Having people to talk to and lean on can make a big difference. There are many online and in-person support groups available for people with lupus.
  • Educate yourself about the disease. The more you know about lupus, the better equipped you will be to manage it. Talk to your doctor about the latest treatment options and research.
  • Stay positive. It is important to have a positive attitude, even when things are tough. Focus on the things you can do, rather than the things you can’t.

I know that lupus can be a difficult disease to live with, but I want to assure you that it is possible to live a full and meaningful life. If you have any questions or concerns, please don’t hesitate to reach out to your doctor or a support group.

Additional tips:

  • Avoid your triggers. This may vary from person to person, but common triggers include stress, sun exposure, and certain foods.
  • Eat a healthy diet. Eating nutritious foods can help to reduce inflammation and improve your overall health.
  • Get regular exercise. Exercise is important for everyone, but it is especially beneficial for people with lupus. It can help to reduce pain, improve mood, and boost energy levels.
  • Get enough sleep. Sleep is essential for healing and overall health. Aim for 7-8 hours of sleep per night.

Remember, you are not alone. There are many people who understand what you are going through, and there are resources available to help you. Join our free, supportive facebook group: https://www.facebook.com/groups/lifebeyondchronicillness.

And for more support, listen in to our full Lupus podcast episode.

Want to hear more about this from my perspective? Tune into this episode of 123 Momsquad!

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